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Tentative About Starting Humira
I was recently diagnosed with AS. I had started Celebrex 3 days before meeting my rheumatologist. The rheumatologist barely read my chart or listened to anything I was saying before telling me I need to start Humira. My inflammation markers are all down to normal ranges after Celebrex. My pain levels are drastically reduced - though I still have SI joint pain. The Dr said Humira stops the disease progression- which is why I need to start. If my inflammation is down, is the disease still… read more
@A MySpondylitisTeam Member. Stem cell therapy through BMAC actually is covered by many insurers. Humana covers it. That's my insurance underwriter. I'm pretty sure the reasons it did not work for me… read more
Who Has Temporal Arteritis Along With Spondylitis?
As if Spondylitis isnt frustrating or painful enough. 😑 I went to my Opthalmologist today for eye pain that causes piercing headache with shooting nerve like sensation thinking it's just a bad uveitis flare from my recent trip and quitting all anti inflammatory meds in preparation for this week's stem cell transplant. He thinks i have temporal arteritis and wants me tested tomorrow by temporal vein biopsy. Im thinking I'll wait til next week sometime after my Monday Nephrology follow-up from… read more
@pitacThanks for the hug my dear friend❤️
Having A S. I Have Very Bad Memory Issues. And Bad Brain Fog. Anything That Helps? Also Bad Arthritis In Left Knee. Pretty Much Everywhere
@A MySpondylitisTeam Member. If you're a veteran, you can already have stem cell procedures covered by your insurance. I did. Tricare Select is our type of insurance. $8-10K and paid not a cent. You… read more
Stem Cell Transplant Is FDA Approved For Spine, Hip, Knee And Ankle Treatments. Check Your Insurance Carrier If They Cover The Treatments.
Stem cell transplant using your own cells may be a good treatment instead of surgery.
@A MySpondylitisTeam Member. Hi Brian! I've been thinking of you, great to hear from you! Yes, I'm excited to try it. I'm just sorry that it didn't come available a long time ago to help you and… read more
Are These Symptoms/results Related To AS Or Something Else?
I'm newly diagnosed with AS. Just curious if anyone else has these. I have pain on the roof of my mouth and tongue. Little pinpoint dots that inflame up and go away. I also have rashes that were dx as uticaria vasculitis. High CH 50, low IgG.
@A MySpondylitisTeam Member. Oh wow Rhonda. I am so so sorry. Your pain and disease is very real. It us definitely not all in your head and it is definitely well documented. I have a busy day today… read more
Chronic Neck Pain??
Just wondering who else has neck pain and how common it is? I already had a double fusion for Cervical Myelopathy in 2020. My neck seems to bother me more than my back. Everyday it is on fire and feels very warm. I was told I also have AS at the Occipito-Atlanto-Axial Region.
Just wondering how common of a symptom this is? Thanks.
This is unfortunate for you, and hope your solution will be the one that works for you.
The way mine was explained in a simplified way, is that the natural bone growth from the AS would weave… read more
How Is As Effecting My Disc. Just Had New MRI Every Disc In My Spine Is Now Herniated. Head Aches Are Getting Bad.
Have ra, pa,ac.
In some bad weather right now, but I will post after my surgery on the 17th!!!
Has Anyone Getting Recurring Headaches I've Had One For Nearly 2 Weeks I've Took Paracetamol And Now I'm Trying Nuromol Any Suggestions? 🙏
I went to my GP yesterday she has prescribed migralieve and a nasal spray she thinks it's my sinuses from a recent respiratory infection I also have booked an eye test for Friday can't seem to… read more
I Am On Prednisone Everyday And Trying To Come Off But My Body Would Prefer I Don't. How Long Is It Advisable To Stay On Prednisolone.
@DavidDickson-Sudden withdrawal from Prednisone or other steroids would put you at risk for ADRENAL INSUFFICIENCY! DO NOT STOP TAKING YOUR MED UNTIL YOU HAVE TALKED TO YOUR DOCTOR AND HAVE STARTED A… read more
Name This Condition Please
Symptom: Entire hip area front to back right side from outer top of Iliac Crest all the way down to hip socket outside to entire upper thigh and groin up to mid pelvis. Imagine a tight tourniquet there. Not excruciating pain so much as intense squeezing tightness, mild swelling, nothing truly frightening. Difficult to move, feels like it weighs 500 pounds on a 115 pound woman, HEAVY. Comes on with gentle stretching and walking. Mild swelling and outer tendon pain below knee joining the fray… read more
Hi Pitac,
Thank you for the note, I will let you know. I have been sleeping a lot lately with the eye grains.
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