Connect with others who understand.

Sign up Log in
Resources
About MySpondylitisTeam
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Face That Look On Others -- Like They Don't Believe How Much Pain You Are In? Makes Me Want To Stop Sharing At All!

A MySpondylitisTeam Member asked a question 💭
Newport, RI
October 23
Be the first to like/hug
A MySpondylitisTeam Member

My bad, forgot the attachment

October 23
A MySpondylitisTeam Member

@KrisPlfitsmeant2BItsup2Me.
Hi Kris, i did a Google query, "PT for Spondylitis Orlando" and this organization popped up. Maybe they will help you. Sometimes it's just a matter of finding the right type of therapist for your condition.
I also have Psoriatic disease. End finger joint penciling, numbness, dactylitis, pain makes tapping out posts challenging. For people to reach you more easily directly on this site placing the @ symbol then your moniker as i have done at the start of this post gets right to you more easily. How about helping a fellow sufferer out and shortening your moniker to fewer letters?😏🙏

October 23
A MySpondylitisTeam Member

Oh Kris, I definitely read your exasperation in your message. The overworked medical community is understaffed for demand to serve patients. They are human beings just like us with their own challenges unknown to us. When they are faced with an angry patient they are definitely less receptive. So sorry you are feeling so strongly and receiving even more frustration while looking for help, Hang in there. Deep breaths, maybe try to go for a walk if you can still walk before talking to medical personnel. I have found that killing them with patient enpathetic kindness works really well, especially here in FL. 😌🙏

October 23
A MySpondylitisTeam Member

Amen to that! People have no idea. I can't find "physical therapy" in Central Florida. They will NOT touch you even if you're disabled like me. They've been exposed and I don't need my 8 year old seeing this. If I want hands-on, I have to pay for it because they "I only work on athletes not crippled people.". I have severe PTSD just due to how I've been talked to the verbal and mental abuse is not worth it. I'd rather be poor and be happy. Definitely can't afford to live here any more and why would I? I'm from the northeast and I didn't know corruption until I moved to Florida. I have AS & Severe Psoriatic Disease and I had to find out by reading my own labs and NOT from my UCF MD.

October 23
A MySpondylitisTeam Member

:) Haha! Great.

October 23

Related content

View All

Why Can't We Share Our Successes?

A MySpondylitisTeam Member asked a question 💭
Fort Walton Beach, FL

Who Has Temporal Arteritis Along With Spondylitis?

A MySpondylitisTeam Member asked a question 💭
Fort Walton Beach, FL

I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?

A MySpondylitisTeam Member asked a question 💭
Winnemucca, NV
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in