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Why Can't We Share Our Successes?
I love to hear the successes, even what some people think are too small for anyone to be interested. They are ALL inspirational to me. No one on this and other forums about lifelong suffering has anything easy about their life. Every day is a triumph over death. Why not share more triumph? Venting is good, but probably better and more appropriately done with a paid therapist trained at handling it. Lashing out at strangers for sharing a win over chronic disease perpetuates the misery. I don't… read more
@A MySpondylitisTeam Member. And I'll be waiting to kick butt on that something else. You never met a fighter like me. I prefer my saying, "what doesn't break you makes you better in ways you never would have imagined" See my post for my progress report for today.😊
Pitac - Honestly, I feel fortunate to have gotten AS when I did. During the 14 years it was undiagnosed most doctors believed I was in pain, some probably thought I was crazy.
At the time of my fist fare I was in college and working in a small factory. My employer suggested I apply for workmen's comp. It was thought I hurt my back.
This would never happen today! I did. Was sent to a few doctors, saw a phycologist and interviewed buy the investigator of my claim. The investigator flat out told me I was faking and they'd be watching me and that I could go to jail for insurance fraud.
Back to not knowing what I had and finding out what it was 14 years later. The doctor who diagnosed me, after a bunch of x-rays, told me I had ankylosing spondylitis. I couldn't say it or pronounce it and mostly forgot about it. It was something weird or rare, but so what, it didn't changed anything.
That was in 1984. There was no internet or other resources to figure out or research what I had and what to expect. So I just lived forward and dealt with the pain a day at a time.
Today, if someone is diagnosed, because of all the information available, they feel like they are doomed. I life sentence to a dehabitation disease with no cure! "My life is done"! Sort of like Job in the Bible.
I was truly fortunate. I have no idea how I would ract today.
The big message is our disease and it's impact on life has a lot to do with what goes on between our ears, in our mind.
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@A MySpondylitisTeam Member. Thats fantastic! When we share the things we can still do despite a severe chronic condition it gives hope and inspiration to others that their life doesn't have to come to a screeching halt. We might not be able to do everything we could before crushing fatigue and multiple surgery recommendations, but we can still have enjoyable meaningful lives worth striving for.😌🙏
@A MySpondylitisTeam Member. That's half the battle won Judy! This is how I do it...
Amen. I thank God every morning for the strength to get out of bed.
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Dealing With Pain
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