Your right, I don't let the hard days win. We are too tough for that!

@A MySpondylitisTeam Member. Maybe it depends on the type of tissue in the joint that is inflamed. Ourely speculating here, but im wondering if water or lymphatic fluid buildup woill show up on some types of scans. Im pretty sure that it does on ultrasound, but doesnt on xray. Just an example. 🙏😌

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@A MySpondylitisTeam Member, that can’t be right. My rheumatologist PA says it’s rare to have more than one autoimmune illness. I swear, it was so hard to keep from rolling my eyes while thinking “It’s really sad I know more about my illness than you do.” Same one told me several years ago that AS doesn’t affect hands. That girl needs some CEUs about basic AS. I’m sorry you have all those dieseases, each one a horror show on it’s own. A quote I like from a book series I love is Don’t let the hard days win. I have it on my keychain.

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@A MySpondylitisTeam Member. Hi Ali, happy to help. It took me about a year of trying dufferent this and that before i found something that finally kicked it for good. That was about 8 years ago. It popped up out of nowhere on just one side, right foot and hand. At first i thought i had gardening chemical burns. My dermatologist biopsied and said palmar plantar pso. My routine went like this:
1) Clean with gentle antiseptic liquid cleanser;
2) Dab dry but leave a bit damp, immediately apply topical mild steroid cream
3) Let sit 5 minutes then apply generous layer of all natural heavy hand cream. I used Burt's Bees Almond Milk handcream, maybe you can get online. Rub in nail tips to past wrists and ankles;
4) Immediately put on copper infused gloves. Copper is said to have healing anti-microbe properties. I don't know if that's really true, all the ads for copper infused clothing claim it. I like Copper Fit brand gloves because they're just $20US, easy to find at drugstores (chemists), can be washed, worn under gym or gardening gloves as an extra protective layer, they have gripping material on the palm side making gripping and holding onto, turning things easier, lightweight and fit like a second skin. For feet immediately put on clean, dry, snug but not tight socks.

Psoriasis gets worse when allowed to dry out. By wearing gloves and socks you dont need to use handsoap as frequently. Washing hands dries them out, as does using hand sanitizers. Buy multiple pairs and wash each at least weekly in gentle wash, let air dry the gloves.

When i had hardened dry snags of skin from the lesions and cuts, to keep them from snagging and pulling farther then bleeding i used an electric nail file to gently smooth the snags down, then apply all creams and cover. For raw to bloody area i covered with Emuaid Max then placed a white gauze square over it. The Copper Fit gloves i wear do a good job keeping the gauze in place.

My hands and feet have been clear since then, 6 or 7 years i think. Anytime the skin feels tight and thick or itchy i generously rub the Burts Bees in and out on the gloves. Like that til back to normal, typically just a day ir two. Im vigilant about wearing gloves doing house and yard chores. I always wear the CF gloves under garden gloves.

I dont work for or invest in Copper Fit. They just happen to be the only brand my local chemists carry. There may be others.

Vigilant skincare is paramount to kicking psoriasis. I have guttate too, tried 5 biologics to no avail for Psoriatic arthritis, quit them one year ago. Skin is 100% clear now. Diet, antioxidants, know your triggers and avoid them like the plague.

As for is it common for AS? No, not impossible though for comorbidities, but it is definitely common for Psoriatic Spondylitis, psoriatic diaease with manifestation in the spine and all the joints in the body. Welcome to my world. Its a big ol party🥳.

Kindest regards 😌🙏

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