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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Was Just Told I Do Not Have Spondylitis But Spondylosis. Does Anyone Have Any Information On This?

A MySpondylitisTeam Member asked a question 💭
Dewey, AZ
June 4, 2020
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A MySpondylitisTeam Member

Well..i tell you what members..it doesnt matter if its itis or osis the pain is the same..chronic and excruciating ..and the pain will wake you up from your sleep..When will they find a cure??? Thanks have a pain free day..

December 18, 2023
A MySpondylitisTeam Member

I understand that feeling of losing yourself. I try to keep a positive attitude to keep my mind from dealing with the pain. Excersize was a main part of my life and now I am unable to, due to the pain. I look for stretching in different areas, several times during the day to help combat pain and it helps boost the attitude of, " I can do this " !!! 🙏

July 21, 2023
A MySpondylitisTeam Member

I have been told I have this..its very depressing to me as I just feel I have e lost who I am..lumbar sacral sooo I have bad hip pain..both hips..I walk like I am 99...coming from being very active..I try not to think of it...now I feel like every joint in my body hurts...sigh...ty for listening.😔

July 15, 2023
A MySpondylitisTeam Member

Don't let them prescribe oxycodone for pain, it causes more pain with this than relief, I don't know why doctors go for that so fast but it is okay for short term pain but not long term

July 14, 2023
A MySpondylitisTeam Member

It's frustrating that I spent 15 years being accused of being a pill seeker, I would tell them please just find out what's going on with me, then worry about treatments, I finally found a great practitioner she knows more than many doctors, she listened and looked concerned, then ordered my hbla27 labs that point out only 3% of our population suffers with this, but now my doctor has sent referral after refer to the local hospital that monopolized our area, and they keep ignoring my referral, it should be malpractice when doing patients like ourselves become rejected, accused of being dishonest, all along the hospital is the one who's created many health problems of mine, I'm just exhausted lately and need an ra doctor, it's beyond reasonable our healthcare system is now

May 21, 2023

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