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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do You Have Temperature Sensitivity And/or Night Sweats?

A MySpondylitisTeam Member asked a question 💭
Atlanta, GA

I’m struggling with a constant “it’s hot, now I’m cold” dilemma during the day. Then when I go to bed, my body is sweating at a disgusting rate. Then I’m freezing. It’s really impacting my ability to get a a good nights sleep
The sweating seems to be along my neck and spine where the AS is the worst. Is it the AS
I’ve tried the obvious things like - adjusting the temperature in the house, lighter blankets, etc.
I noticed that new patient forms ask if you have night sweats or chills but… read more

July 9, 2023
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A MySpondylitisTeam Member

I found these capsaicin patches at Walgreens and CVS. I put them in my back. They peel off a plastic and have little holes like masking tape. They have “substance P” in capsaicin - cayenne pepper. It tells the area not to tell the brain you hurt.
It also cools down your body temperature.
You should also do omega 3 or flaxseed or primrose oils. Up to two grams a day. They lubricate your nervous system .

February 18
A MySpondylitisTeam Member

Yes.. it's horrible.ill feel cold but burning up ..sweat ...will look like I haven't washed my hair in a month when I wake up in the morning... Whole new meaning to morning hair now lol

February 6
A MySpondylitisTeam Member

So sorry you’re going through this part of the disease 😔.
I have been taking a soft ice pack to bed with me and it’s helped 🙌🏾. The head seems to play a role in heating and cooling the body so I put the ice pack on my head, face and neck. It’s been very cooling and seems to allow for more uninterrupted sleep 🥰. Maybe give it go for the nasty night sweats 🥵. Have a peaceful sleep 🤗

July 16, 2023
A MySpondylitisTeam Member

I have the same difficulty

July 9, 2023
A MySpondylitisTeam Member

Yes @A MySpondylitisTeam Member !!! It’s SO frustrating !! I did a little research and it’s definitely linked to AS but they don’t know why. Maybe because we have over active immune systems? Maybe because our bodies are fighting the inflammation?? It seems to be coming from the back of my neck, my spine and breast bone. All the places that AS is attacking.
I was just sitting on the couch with a blanket on me so my husband goes to turn off the overhead fan - very considerate - but wait! I’m now breaking into a sweat so keep that fan going 😭.
I have bought only cotton pjs, several different sheets, “sweat towel” by my bed, bought lighter comforter etc etc.
I still suffer. It’s really interrupting my sleep and it’s disgusting. Then of course the painsomnia comes. Sorry for the rant. I’m just at my wits end with this one 🤯
If anyone has any tips then please do share. 🤩

July 9, 2023

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