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Does Anyone Diagnosed With AS Also Suffer With Severe Persistent Night Sweats?

A MySpondylitisTeam Member asked a question 💭
Motherwell, UK

I am currently dealing with regular night sweats and trying to determine if it's part of AS symptoms or possible medication side effects.

September 11
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A MySpondylitisTeam Member

Hi Donna, truly feel for you, as I know what you may be going through.

Back a couple of previous lives, and pre-diagnosis, I had the night sweats, every night, requiring us changing the sheets two to four times a night, they were literally dripping.

I was working double shifts (8hrs / shift), and because of the night sweats not sleeping, long story short, I collapsed at work and ended up in the local hospital. At the time I was around 63-69kg and 1.6m tall, and got down to 43kg, just as they diagnosed me after ten weeks of testing. In the end it was an x-ray that confirmed the diagnosis.

Early stages of ankylosing spondylitis can show as ongoing fever, night sweats with subsequent weight loss as the body is attempting to fight the body that is in pain and stiffness and the accompanying severe inflammation because of all this activity.

Once I was on meds, it quickly became mostly controlled, and with a full diet the weight gain back to normal began. I was back at work about a month after I was released. Oh and work pulled my hours back to 12 hours max a day, and the bonus was I got to see my new baby daughter who was by then two months old.

I truly hope you'll find a solution soon, as any amount of fluid loss isn't great for the body. I do wish you well.

September 14
A MySpondylitisTeam Member

At 43, i hate to be the bearer of potentially unwanted tidings😬, but it could be perimenopause. I and most of my friends started having night sweats due to that in early 40s. Just another way life rewards you for having been alive another day. Time for deep chill AC, open winter windows, and sleeping naked on top of covers. 😂🙄🤙The good news, that stopped a couple years after menses did for me. You just have about 10 years to go. 🤪😳Hang in there, uncomfortable, but the least of your challenges. If the hot flashes that are coming make you nauseous like it did me, ginger chews individually wrapped work wonders. And a fan in the purse. Kind regards😌🙏

September 11
A MySpondylitisTeam Member

As someone who always get super sweaty while I sleep.
I've always had it even before the medication.
They only happen to me during a high-tense dreams. Like night terrors and stuff.
I sleep with many fans and keep my room cool to help regulate my body temperature.

September 12
A MySpondylitisTeam Member

I hope you have good AC capabilities Brandon. Kindest regards ☺️🙏

September 12
A MySpondylitisTeam Member

Personally, I think my night sweats are part of my medication and not from AS. I could be wrong cuz AS has countless side effects, but I am quite confident mine are from the medication that I am forced to take, sadly, to be able to just live.

September 12

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