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Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

A MySpondylitisTeam Member asked a question 💭
Angleton, TX

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

May 19, 2019
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A MySpondylitisTeam Member

It happens when I sleep so I got a duo derm padded top layer for my mattress .
Also better pillows that are soft and I sleep slightly elevated
I find the discs push into the spine and if I sleep too long I get that numbness and cold feeling in legs and hands
You have sensory nerves that come out horizontally from the disc areas . When your discs become herniated and lack the inflated spongy-ness and space between the vertebrae areas, it affects these sensory nerves.
Above the waist is the vagus nerves and below the nerves is para- sympathetic nerves.
Lumbar area in back causes sciatic pain that runs down your leg. I wear a Velcro’s belt around my lower hips under shirts and suits. I dint have that leg pain anymore. Velcrose belt was online and cost $44
Hardly take gabapentin in the volume I was taking it. Makes you acidic. Eyes get glossy.
I drink aloe Vera juice - cup a day to make me 7.0 PH alkaline. ( good for you unless you have low platelets or leukemia - blood disease )

June 6, 2019
A MySpondylitisTeam Member

I recently learned about a "cooling vset." It sounds like some of us could really use it! Many pockets for soft ice packs. Wear it to bed! Someone else recently mentioned a large cooling pad for dogs she accidently discovered works well for her. Things to consider....

July 18, 2019
A MySpondylitisTeam Member

I find I need oils for the nervous system and that feeling of temperature and numbness goes away. I do vitamins A,D, and Omega 3
And of course three times a day Magnesium Glyconate-chelated magnesium they call it-200 mg
The nerves need lubrication
Don't take aspirin. It destroys collagen. "Anatomy of an Illness" by Norman Cousins ligaments, tendons, skin replication these get destroyed with aspirin.
Vitamins A,D, and Omega 3 do like aspirin, they also thin the blood.

May 31, 2019
A MySpondylitisTeam Member

I go thru the same thing but my biggest temperature complaint is the acute profuse sweating. I can be sitting still in a cool restaurant on a cool booth seat and suddenly break out in a bad sweat. I'm not talking a pretty, glowing sweat. This is a "I just ran half a mile and boy am I out of shape" sweat. Unfortunately its NOT hormonal so no light at the end if this tunnel. I've always hated winters and summer was my favorite season but now I'm not liking summer much either.

August 2, 2019
A MySpondylitisTeam Member

The discs push against the spinal column So my legs go numb too. I had a real bad car accident ten years ago.
I got mattress pads and nice fluffy pillows. Mattress pads make all the difference !
Also I do fish oil. It helps your nervous system. Aloe Vera juice keeps me alkaline. If I am acidic I feel more pain. One cup of aloe Vera juice a day.
I can’t drink alcohol.
It raises my blood pressure and I feel more pain.

September 5, 2021 (edited)

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