Any Tips For Toenail Care? Details Below Including Fused Back, Scoliosis, And Extremely Arthritic Deformed Feet.
My upper back is fused and my lower back has double S curve plus fusing. My feet are both badly disfigured with arthritis. One was so bad, they had to amputate a toe. I have to cut slits in my one pair of shoes. All of this impacts my ability to take care of my nails. It is extremely painful to work on them. Plus, I don't get out so having them done wouldn't work
D/O's: Ankylosing Spondylitis, Lupus, Addisons, Scoliosis, chronic anemia, hyponatremia, neuropathy, hypothyroidism, Hypoglycemia… read more
I have never looked into home healthcare. Maybe it's time to check into it. Thank you!
What Vitamin D Is Good, What Brand?
Nature's Bounty
Is Spine Surgery Worth It?
Guess this is very individualized. But wanted to share this link as they make videos of actual surgeries on cadavers and can watch on YouTube. I get their emails so I can keep up with the latest technologies and best surgeons in the nation. Seattlesciencefoundation.org. They cover many surgeries, treatments and not just spine. Some surgeries are rather graphic and barbaric looking so spoiler alert. Especially rods and cages, screws and such.
No one mentioned stem cell therapy in lieu of surgery. That is now an option covered by most insurers and has a higher pain relief success rate. Its not permanent, and you do need to have a healthy… read more
How Does Everyone Deal With The Pain Of AS?
As
@A MySpondylitisTeam Member. What a miracle! Double lung transplant and you're alive and able to type, a true medical miracle 🙏. Congratulations! Alas, lifelong pain is to be expected for you. Ask… read more
Strapped Budget Diet/eating Habits?
I am STRAPPED big time currently $$ wise. We are also rolling into winter so very limited on fresh fruits & veggies... I LOVE Salmon but it is just EXPENSIVE. I really struggle with GI flares... I tend to ignore the pain and keep going so my body uses GI FLARES to MAKE me stop... I just can't always stop as I still try to transition after a diagnosis so recent but after decades of having AS symptoms. I know I need to focus on diet and less "processed" food but I'm a Single Mom, Home owner… read more
What is a flashfood program? I’ve never heard that before?
Tingling And Numbness In Arm - Anyone Else?
I started having some numbness and tingling in my right shoulder, down the arm and into the hand. This is 2nd time in a week it has happened. I can still move it, still feel like normal, no pain, no other symptoms (other than panic/anxiety thinking it might be a stroke) I mentioned it to my rheumatologist when i saw her last week and she said its probably a nerve as the other time happened when i was driving for a couple of hours..
Has something like this happened to anyone else?
Yes , my neck surgery helped a lot . I don’t get the numbness as bad when I drive long distance .
Anyone Negative For HLA B 27 Here?
I'm currently in my work up for AS. Dr. Dx it as AS. I believe it's
AS but my HLA B 27 just came back negative. Anyone else negative?
@A MySpondylitisTeam Member. Complicated conditions are always confusing. To make matters even more confusing is the fact that most of our symptoms also happen to occur as a normal course in the aging… read more
So Confused On The Best Diet For Spondyooarthrisis. Is It Low Starch, Vegan, Mediterranean?
Just keep reading conflicting information…I know at the end of the day is specific to the individual, but what works for most?
AS is caused by inflammation from a certain bacteria that people with the HLA B27 gene for AS is sensitive to. It is almost impossible to kill the bacteria with antibiotics or the specific probiotic… read more
Who Has Temporal Arteritis Along With Spondylitis?
As if Spondylitis isnt frustrating or painful enough. 😑 I went to my Opthalmologist today for eye pain that causes piercing headache with shooting nerve like sensation thinking it's just a bad uveitis flare from my recent trip and quitting all anti inflammatory meds in preparation for this week's stem cell transplant. He thinks i have temporal arteritis and wants me tested tomorrow by temporal vein biopsy. Im thinking I'll wait til next week sometime after my Monday Nephrology follow-up from… read more
@A MySpondylitisTeam Member. Thank you my Doll! I always smile big and feel amused when i hear from you! I know you suffer so thats not what makes me smile. It's the humor spin with heart that you put… read more
Balance Problems
I'm new on here and I haven't seen anything about balance problems. Is this just me or does anyone else have these problems. I just can't always walk a straight line. When I walk down the hallway in my house I sometimes almost bounce from wall to the opposite wall.
I have had balance problems. They come and go but I've only fallen twice and luckily onto a soft area. I no longer walk gracefully, clumsy and off step. It does seem to be one of the gifts from… read more