I appreciate your willingness to share your experience. I agree with your sentiment about PT, most just don’t get it. However, I have found a mind body movement program which allows me to move from head to toe at my pace without jarring & forcing joints or ligaments & tendons. In the past 10 months NIA has replaced my 2-3 times a week PT. I feel I’m better now than before, both physically & mentally. I recommend this for anyone who is looking for something new & safe as it can also be done in a chair & at a very athletic level, it’s always at your pace. NIA is a combination of healing arts, martial arts & dance arts, the best of time tested techniques.
SI joint surgery is scheduled & I’m trying to gather as much information as possible before.
The pelvic pain is no longer manageable & I need to know how & if surgery will help. I’m interested in anything that might be helpful that you wish you would have known.

The fusion was caused by AS. Initially the pain was terrible. Very difficult to walk. Over the years the pain came and went at differing degrees. The pain felt like it was in my hip. Thus, any leg movement aggravated the pain. (This was many years ago before a diagnosis).

Yes, the pain did and dors returned but to a lesser degree.

I’ve found no rehab or TP that works. Actually TP makes it worse. TP people don’t get that trying to stretch a fused joint can make it worse. Plus, AS does attack the tendons too. I’ve tried TP several times only to find myself worse. The therapists don’t understand the limitations in range of motion AS people can have.

@A MySpondylitisTeam Member. Hi Denise, reach out to Trent on my team. He has had both SIs fused recently and says it has helped him. Find him by clicking my picture, open the team tab, scroll to page 5.

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How much relief did you actually get?
What types of pain did you have?
Would you do it again?
How long was your rehab?