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Did Ankylosing Spondylitis Change You Other Than Physically?

A MySpondylitisTeam Member asked a question 💭

Does anyone else feel like their personality and outlook on life has changed?
I put a smile on my face but inside I just feel so sad. Like I’m just a shell of who I used to be. Like the old me is gone. Most days I am okay but some days it is such a struggle to do anything like chores or things I use to enjoy. I don’t know maybe I’m just having a rough day. I know talking to my fellow Spondylitis sufferers understand. 😔😟

February 6, 2023
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A MySpondylitisTeam Member

I definitely have those days, more often than Id like to. This is a tough disease for sure. Hugs

February 14, 2023
A MySpondylitisTeam Member

Hugs to you! I really do understand. Today I didn't want to get out of bed, but I'm glad I did, because it's turning out to be a good day.🌻

February 13, 2023
A MySpondylitisTeam Member

100%..... it's like I'm a ghost. I miss me.

February 11, 2023
A MySpondylitisTeam Member

I feel like this daily.. especially when I'm experiencing more pain and/or stress. I don't feel like myself. I can't even describe who or what I feel like. I appreciate my husband taking me as I am. He also gets brain fog, so he understands. I was going to ask this question! I'm glad there are others that do understand
The fatigue and brain fog does not help. My personality has definitely changed and it's worse with the 2 conditions as well as pain goes.

February 6, 2023
A MySpondylitisTeam Member

Yes!!!! I’m this everyday waiting and searching for some kind of pain relief. Since Medicare and Medicaid won’t pay for the mental therapist I want and need, I self medicate with THC gummies to relax my back and brain. It gives me the “ok don’t give a shit” mood. I also vape my CBD oil.

February 6, 2023

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