Yes me, I have hEDS

I do

Yes, i learned about the long wait times for specialists in AU when we lived there. Wow. And Americans get irate over waiting 6 months. Talking to one of my surgeons i understand that 3 year waits here are coming soon now that we have availability for universal healthcare here thanks to Obama, a high debate subject. That along with the largest population percentage being over 60 and early physician retirement due to burnout doesnt help. A surgeon friend of mine in Canberra told me most med school graduates from AU come to the US for practice to be in private practice to make enough money to pay their bills. But now more and more corporates and govts here are taking over private practices changing the pay scales. Citizens in the US are clueless whats coming as a result of all the political changes taking place here. Many who live overseas have US military healthcare so they still have no idea about the scarcity that appealing sounding options like care for all and govt programs bring. 😒

I do have hypermobility, but have never been diagnosed with HEDS even though I have the symptoms for it. Where I live it's a 3 year waiting period to see a specialist for this. I have nr-axSpa with the start of AS due to this. A bit different than yours.

Similar, maybe. I have Psoriatic Spondylitis axial peripheral bilateral diagnosed, all the symptoms of EDS but haven't bothered to chase after a diagnosis for that. At some point one opts for living as opposed to sitting in yet more drs offices chasing more diagnoses. Ive learned to look up what the treatments are and decide if im willing and able to bring myself to do them before making a bunch of appointments looking for definitive answers. For example, im not willing to take biologics anymore without a blood test to determine which one i actually need first. Most Rheumis offices dont do that and so their treatments are like blind folded dart throwing with a spin around. Good luck to you and try to get out and enjoy beautiful Spring weather Down Under. We used to live in the ACT. 😌🙏🌏