Definitely see a genetic specialists or Rheumatologists I take CBD oil and the patches for PaIn I exercise walk low weights and move My hip was popping out I had a osteoarthritis and they did a hip replacement and sometimes still pops out I have misdiagnosed 3times one said I had AS And Rheumatoloid Arthritis so End of having osteoporosis osteoarthritis pscoriatic some spacer for some rheumatoid and definitely pscoriatic It is crazy to figure it out They are finAlly treating me for pscoriatic osteoarthritis osteoporosis and ulcerative colitis which is an effect of AS
This is definitely a Crazy ❤️ Train. toot toot 🚂🚂🚂🚃🚃🚃🚃Prayers and Hugs too all

I'm not sure of what Hypermobile spectrum disorder is, but i do know my joints are very loose. My jaw, and all my other joints can move in ways most people cant. I at 65 and over 250 pounds can lock my knees and put my hands palm flat onto the ground. I used to be able to twist like a pretzel, i have to lose some weight first.
If this is close, i got it, mine is a birth defect. It has done a mess to my spine.

I am a medical student with AS and I was firstly mid diagnosed with Ehlers Danlos. I ended up doing a very expensive genetic test and I was negative for all the genes required to have the syndrome. This syndrome depending on the type can have several manifestations eg heart or lungs etc. I think you should try to talk to your doctor and ask for a genetic test to be sure cause the syndrome needs monitoring and they also have to categorize you on the type so you can understand and talk about prognosis. I will not bore you with the info you can find on the internet but maybe take another opinion from a specialist. The thing with me and my misdiagnosis was that I hadn’t yet progressed to have serious problems and thus, it took me a lot of visits to doctors, blood tests, crying and actually taking a gap year. Chronic conditions are really difficult to manage inside you I mean psychologically so it’s better to take action now and get confirmation from other specialists to have a better prognosis and actually starting an appropriate treatment plan.

Hope for the best!

Magdalini

Hypermobile spectrum disorder is similar to Ehlers Danlos but there is not a test yet for the genetic mutation for what causes HSD as there is one for ED, its accompanied by hyperlaxtive joints, slow blood flow, fatigue, susceptibility to injures of the spine/joints/etc. It is where the collagen in your joints is defective and too bendy to hold yourself in correct position so a bunch of other problems arise, another common syndrome you could have if you had HSD or ED is something called POTs which is Postural Orthostatic tachycardia and symptoms of this include, when you stand up too quickly or even at all you see stars and feel like your gonna pass out or might even pass out, dizziness/ light headed ness are also symptoms

You keep describing me, but i have never been diagnosed.