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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Recently Changed Specialty Pharmacy's For The Third Time In 14 Months Due To My Insurance.

A MySpondylitisTeam Member asked a question πŸ’­
Jefferson City, MO

They are withholding my Humira script because I had a basil cell cancer spot on my ear removed last May 2023. I started it March 2023. It was biopsied, cut out, and healed perfectly. I've been without and the process looks like they need the derm doc to call them and let them know I don't have cancer. I had a bad rep who told me to get the information from them and call back with it. Then I was told they need the doctor to call. I understand but 2 hours on the phone of misinformation and… read more

April 4
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A MySpondylitisTeam Member

Thank you as always for your information, Pitac. I was aware it could heighten risk of cancer but the spot on my ear was there 2 years before I had it treated just because I didn't have any insurance. As soon as I was able to purchase some I saw the derm and had been on humira for 8 weeks before it was removed. That being said my rheumatologist did not feel I was at a higher risk than others using H because it had been 30 years ago. I'll look into and discuss with my doctor, (after I look up those big words I cannot even pronounce. LOL! Thanks, again.

April 4
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. You're a true inspiration Lola. A fighter, survivor, overcomer, and thriver of the highest degree. One to look up to. I am just a humble observer and sharer in your shadow. πŸ˜ŒπŸ™

April 5
A MySpondylitisTeam Member

Thank you again for your perspective. Summing up all you said in your last paragraph, "Better health and living through better diet and nutrition is a no-brainer in my humble opinion. All meds have side affects. It just depends on whether or not the side affects are ones you can live with. Biologics caused me too many side affects I was unwilling to live with and no relief in my arthritic pain. But to each his own. The best choices are the ones we can sleep well with at night. And that is true in all matters. πŸ˜ŒπŸ™".
I wholeheartedly believe everyone here believes that living through better diet and nutrition is a no-brainer. This type of disease gives us all a reason to pause and reconsider behaviors we could improve upon. As for me, I've done so as have you with nutrition. I say this with the utmost respect and transparency, I live below poverty level. My options are quite limited. I'm resourceful because I was raised that way. I've lived with allot and little but for those who are in the "little" the options you speak of doing I have little access too, including insurance coverage. I'm a fabulous cook. I have eaten out once in the past year. It's a broad scope of diverse people globally who access this great site. For now, I'm content with where I am growing, improving, and I'm where I am because I was very ill for a long time before I was ever correctly diagnosed. I take in all the goodness of your knowledge and experience. I will keep it in my planner for AS. Thank you once again for all of your insight and sharing.

April 5
A MySpondylitisTeam Member

The Dr. Put me on Cosentyx because of my history with skin cancer. She said that Humira is not a choice for people with cancer history. She is with Johns Hopkins in Baltimore MD

April 8
A MySpondylitisTeam Member

Yes, Fucoxanthin has helped me keep my weight at a comfortable level. It causes a thermogenic reaction in the adipose tissue according to NIH. I get a brief hot flash approximately 2 hours after I take it and I'm not as susceptible to cold temperatures.i believe that's most likely the burning of the adipose fat, something I'm perfectly fine with the hot flash for. The hot flash doesn't last more than a minute. When I was taking that supplement, mine is blended with fish oil (Omega 3) and Astaxanthin (another great antioxidant) for best bioavailability, along with Andrographolide blended with curcumin, twice a day my overall average daily pain dropped to a 2/3 and energy level at an 8. It was fantastic. I had to quit supplements for awhile leading up to my stem cell transplant and the pain and fatigue came back. Now that the stem procedure is complete I can get back to my supplements. It took about 2 months, like as with biologics, to notice improvements before. With the stem cell transplant complete and back on my supplements I expect to be back in full swing by sometime in June. Patience. Nothing teaches patience quite like chronic disease.

My Rheumatologist was excited about my decision to try enhanced nutrition over biologics, and stem cell therapy. As drs, they can't tout supplements because of FDA restrictions. However, my Rheumi has a separate Drip IV parlor business so I know she's a keen supporter of better nutrition over medication. She just can't talk about it due to conflict of interest legalities for her license.

Better health and living through better diet and nutrition is a no-brainer in my humble opinion. All meds have side affects. It just depends on whether or not the side affects are ones you can live with. Biologics caused me too many side affects I was unwilling to live with and no relief in my arthritic pain. But to each his own. The best choices are the ones we can sleep well with at night. And that is true in all matters. πŸ˜ŒπŸ™

April 5

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