I was only diagnosed in mid 2021, but yes, from my experience there are ups and downs that come with this condition.
Exercise is extremely helpful but it's about finding a balance, as there is a point at which you can overdo it.
I play golf which helps alot, the combination of walking and swinging a golf club (my rheumatologist also has spondylitis and she plays golf too). Yoga is also extremely helpful.
But like @A MySpondylitisTeam Member said, everyone is unique and it's about finding what works for you.

Mentioned Users

A MySpond...

In my experience the pain can only be 'managed' because the disease is progressive.

I find that any kind of movement helps...... yoga, stretching, walking and deep breathing. I also have and use an inversion table which feels really good.

I have a Rheumatologist who follows my case and has prescribed Amegvita Biologic medication which helps with pain and stiffness, as well as my Inflammatory Bowel Disease (which is associated to the AS).

I am also treated for complex trauma, anxiety, ADHD, PTSD and depression; therefore, I see a counsellor weekly and have appointments with a psychiatrist every 3 months who monitors my symptoms and medication.

I belong to 12-step groups as well, particularly, ACA (Adult Children of Alcoholics and Dysfunctional Families). I have a support network of friends in their healing recoveries and this wonderful group for AS.....

..... to summarize.... movement, professional counselling, professionally monitored medication, groups associated to AS/mental health and supportive friends on a similar journey is how I live life now. I know if these supports were NOT in place, I am 100% certain I would be in a horrible place physically and mentally.

Wishing you health and wellness :)
Shae

I find that walking is really beneficial for me and my condition. It is not for everyone though. I find it eases my pain down. This condition is unique to that individual and relief cones from many different sources

I just find having a (healthy) distraction is key. My mom has had this for almost 50 years and her applique and knitting are what keep her going. I only recently stopped working and i noticed having time to focus on my pain can make some days harder. Wishing you a pain free day.

Tha ks for your responses. I have always been a worrier/stressy type person. (anxiety & panic attacks) The yoga has been helping with the breathing/stretching. I do enjoy walking as well. Thanks again 😊