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Is This The New Normal?

A MySpondylitisTeam Member asked a question 💭
Summit, MS

I had C fusion in January. There was no communication from neurosurgeon that my pain wouldn't go away but simply change it's form. Nothing was said about fatigue, brain fog, weakness/numbness in basically the left side of my body. Am I ticked off for nothing? Is this normal? Not sure what to do at this point

August 31, 2018
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A MySpondylitisTeam Member

I have had C567, fusion in March 2018, and Fusion L45,S1, Aug. 2018. Pain has shifted from hips down both legs and feet. To muscle pain in hips and nerve pain inleft calf to toes. Neck is healing well. I have a bone stimulator for Lumbar. Meds. dont help with pain. Gabepatin 600mg 3 times a day, tylenol, flexril. Over doing increases pain.

September 21, 2018
A MySpondylitisTeam Member

Your symptoms sound familiar, especially for medications. It takes 6 months to get the first results on how the bone is regrowing. If you have osteoporosis it will take longer to see the best results. I had thoracic fusion in April because I fell and fractured the T10. Hope you were offered a bone stimulator. The more you strain your neck the more pain you will experience. Meds that prevent nerve pain have the side effects you mention.

September 3, 2018
A MySpondylitisTeam Member

It seems to be normal for drs not to tell you what to expect unless you ask specific questions. Which vertebra were fused?

July 30
A MySpondylitisTeam Member

Living with spondylitis often means finding a "new normal." This involves adjusting to new realities such as managing medication schedules, attending frequent doctor’s appointments, and sometimes losing friends who don't understand sudden plan changes. Social support from friends, family, and others with spondylitis can Show Full Answer

Living with spondylitis often means finding a "new normal." This involves adjusting to new realities such as managing medication schedules, attending frequent doctor’s appointments, and sometimes losing friends who don't understand sudden plan changes. Social support from friends, family, and others with spondylitis can help you navigate this new path and bring perspective and validation. Have you found your new normal?

July 30
A MySpondylitisTeam Member

I had a C Fusion C4/5 & C5/6 due to Myelopathy caused by Ossification of the Posterior Longitudinal Ligament flattening my spinal cord. After the surgery I had tingling and numbness in my right hand in the area between my thumb and 1st finger, and weakness in my left triceps making lifting my arm above my head difficult. It is still there 14 yrs later but is much improved. I had severe shoulder/neck pain for a few months after the surgery, but PT with a very experienced Physical Therapist helped a lot.
I also did exercises in a warm therapy pool. I have not wanted any more spine surgery since, even though L5/S1 is bone on bone with Demyelination.

August 24, 2020

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