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Does Anyone Have Issues With Sleeping. Not From Pain Issues, But Just Falling And Staying Asleep? I’m Just Wondering If It Is AS Related.

A MySpondylitisTeam Member asked a question 💭
Atlanta, GA
November 24, 2024
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Answer Summary

Members overwhelmingly confirmed that sleep problems are a significant challenge with ankylosing spondylitis, with many reporting only 2-4... Read more

Members overwhelmingly confirmed that sleep problems are a significant challenge with ankylosing spondylitis, with many reporting only 2-4 hours of sleep per night despite trying various solutions. Several members shared practical strategies that have helped them, including medications like trazodone and natural supplements such as melatonin and GABA, adjusting sleeping positions with specialized pillows, using CPAP machines for sleep apnea, avoiding caffeine after 11am and alcohol in the evening, and establishing consistent bedtime routines with stretching and calming teas. A recurring theme was the critical importance of quality sleep for managing chronic inflammation and overall health, with members emphasizing that adequate rest is essential medicine for healing, cautioning that prolonged sleep deprivation can lead to serious cognitive issues, and encouraging each other to prioritize finding personalized solutions that work for their individual bodies.

A MySpondylitisTeam Member

Pitac. First, I knew that you would respond! 😉 Typically during the week (school year), I get up at 5:00 am. During the summer, I get up at 4:00 am for my summer job as I have to travel an hour to get to the office to then hop it another work vehicle to travel another two+ hours to the job. I've actually tried to go to sleep for the night when it hits. Then, much like Darlene, I am wide awake at 1:00 or 2:00 am. I know that I should listen to my body. It is definitely telling me something, but it truly does not matter if I get 3 hours of sleep or 8 hours of sleep at night, I am hit with extreme tiredness at that evening time like clockwork. It hit so hard last night, I actually dosed off after dinner because we ate earlier than normal. However, worried that I would not be able to fall asleep at my normal time because of work today, I pushed myself to wake up. Then, of course, I was groggy until it went to bed. To complicate things, on the weekends, I tend to kinda "catch up" a little on sleep to where I "sleep in" until 7:00 or 8:00 am. However, the weekend is typically when I go to bed later than the normal time. I will say this, in all of this, after my neck surgery 13 months ago, my sleep patterns changed to where I can get 6-7 hours of sleep, not the 3-4 that I got for the previous two decades. What didn't change, however, was that d*mn tiredness that hits every single evening. One more thing, it is not lack of protien. I am a carnivore, at heart, and drink a gallon of milk every three days. Thanks for your response. Your knowledge, Pitac, really does help.

February 12
A MySpondylitisTeam Member

I seem to sleep better in a lean back chair. With my feet up but not flat. In a bed it hurts to turn over. Shoulders wake me up.

February 10
A MySpondylitisTeam Member

It may be related, but not likely. I come from a long genetic line of sleep disorders. Look into trazodone. After a lifetime of rarely sleeping more than 3 hours at a stretch, i finally was put on that one at the age of 37. Im now 59, no problems, just great sleep. It's a non habit forming old school first line antidepressant. No grogginess in morning, just refreshed, and, unfortunately, very aware if full body pain. At least pain doesn't wake me up. And a good night's sleep is essential to battling the pain.

November 24, 2024
A MySpondylitisTeam Member

@BrandinSanchez. Awwww, Brandon, you knew I would respond because you know that I do deeply care about the lives of everyone here. Being an empath going through this mess myself, it helps me wrap my brain around it all and stay the course. It reinforces my commitment to my own health improvements when I practice what I preach. Hypocrisy is not in my veins so I definitely practice what I preach.😉

A strong consistent sleep schedule is the body's number one requirement for healing and remaining healed. Healing from brain to toes cannot happen without it. You are on this site because of chronic need of healing whole body. You need at least 8 hours a night on a regular routine e to give the body a chance to heal. That high level of unavoidable fatigue is your brain inflamed and ......are you sitting down, do so now.....slipping into the early stages of dementia. If you dont want to develop one if the dreaded brain autoimmune diseases (alzheimers or parkinsons) start a regular commitment to an 8 hour, maybe you need 9 or 10 even, sleep cycle that is consistent.

Because you mentioned protein, your brain needs more protein than the rest of your body combined. One third of your bodyweight in grams per day is what you need just to beat your heart, breathe, and digest food. A body that needs to heal from any disease or injury needs another third of your weight daily in grams of protein. If you want to be active - and teaching is exceptionally active - you need another third of your body weight. I dont know about your stomach capacity, but mine simply cannot hold 113 grams (my own body weight) of beef and milk. Figure out how many grams of protein you are consuming on an average day. Then consider shoring up the difference with a high quality protein powder that is easily added to a cup of tea/coffee, sprinkled into eggs or cereal, or added to a whole fruits and veggies smoothie. I like the quality protein powder of Ancient Nutrition brand for the variety of meat sources (fish and poultry in addition to beef), and PaleoValley for their sourced bone based protein powder. Vital Proteins Professional formulas are good for their peptide bond chains that support bone, muscle and tendon repair.

Lastly, you might consider talking to one of your Dr's about whether or not testosterone replacement or supplements that help the body produce more testosterone is a good idea for you. ONLY AFTER making certain your sleep cycle is regular and adequate, and your protein intake is adequate. I am ideally not a fan of hormone replacements, older bodies (over 50) are not evolved to need or handle the hormone levels of younger bodies (20s to 30s). But, then, theyre also not evolved to sustain the energy draining activity level of younger bodies either. Therefore, it might be necessary. Yours in better health P 😌 🙏

February 12
A MySpondylitisTeam Member

I'm the same Brandon. Between 7:00-8:00 pm. Every night. When it's time to go to bed, I'm wide awake, it's like I've gotten my second wind. I could easily stay up til 2:00 am. I'd like to know why also Brandon. Take care.

February 11

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