I am on idacio which is similar to humira. I have been on it for over 6 months. I am still stiff and in pain but can move my arms a bit better than I could. My AS hasn’t gotten worse and the only improvement other than minor movement is my grip strength. My dr upped some of my other meds and wants to give it 3 more months before trying another. So yes it can take time unfortunately

Kidneys - I meant to suggest drinking 3 24oz bottles of water with just a bit of lemon in them every day to keep your kidneys and bladder clean and healthy. Try to eat a diet low in oxylates and a little low in Calcium. 95% of stones are made of calcium/oxylate crystals that kidneys dont break doown in some people. Lemon water dissolves them. Avoid alcohol, it's an inflammatory irritant to the kidneys. Chronic Kidney disease could be the source of your backpain. See a Nephrologist for that, not a Urologist. All the best 😌🙏

@A MySpondylitisTeam Member. Your symptoms and tests for suspected kidney stone and non definitive tests are not to be ignored. Ive been plagued with kidney stones off and on since i was your age, 40 years. Frequently, ive been told, by the time patients seek medical care for suspected kidney stone, the stone has already passed. Therefore, nothing on CT. The pain they cause is during their transit as they scratch the urethra or kidney to bladder walls. While in kidney sitting there building up theyre little more than a dull nagging ache. The vomiting that comes is the result of the stone moving to the tube between kidney and bladder and then getting stuck there, causing a backup of toxins that would ordinarily pass in urine but cant due to the stone blocking the tube. This is when they are most debilitating, a 10 out of 10 on most patients pain scales. I typically need two or three doses if morphine for them.
I attached an article about your diagnosis that may be helpful to you. Im not so sure Hunira will be helpful. The reason it is prescribed first is because that is required by insurance companies as standard protocol for all patients to reduce costs. Many, not all, patients feel better due to placebo affect. Before starting a biologic that can throw everything off in your immune system even worse than it already is, demand a cytokine panel be run. Youll need a teaching/research hospital/University to get that specialized test done, but it sounds like youre no stranger to complicated tests since youve had a cystoscopy. Ugh. Ouch. Ive had that too. 😖.A cytokine panel will tell you which protein molecule (cytokine) is attacking you and, thereby, which biologic actually targets that bad boy. Biologics specialize in specific cytokines. Know if you have TNF-a before taking Humira or Enbrel. Also, you might want to look into the development/manufacturing process of your biologics. Take Humira if you think injections of Chinese Hamster Ovaries are safe. Recombinant DNA from a lab using human and "mammalian" DNA. 🤔
You will probably be better served by a specialized nutritionist/dietician familiar with autoimmune diseases and a doctor of physical therapy specialist for diseases of the skeleton. Youre young and still not finished growing. An amazing miracle can happen within and for you if you address this problem outside the unaffective traditional box most drs try to put you in. There are better options for you, but you need to do the work. Reach out anytime, 😌🙏

Mentioned Users

A MySpond...