My demyelination and optic neuritis were diagnosed using CT scan and MRI. I was on the wait list to see an opthalmologist prior to these scans, but have an appointment only in six months. My rheumatologist has sent my file to a neurologist and I will have additional MRI with gadolinium contrast. Two spots are clearly visible on my brain, and match up in location with the vision and mobility problems I have been experiencing.

Why does it have to be so dang complicated? I hope they can find something to help you Lisa.😔🙏

@A MySpondylitisTeam Member. Hi Lisa Have you seen an Opthamologist and actually been diagnosed with this, or are you just experiencing symptoms that make you think you're one of the "lucky" rare side affect occurrence? It happens and I've been a "lucky" one with other treatments myself so I'm not a disbelievers. If you haven't been diagnosed though and ate experiencing such symptoms you definitely should see an Opthamologist. It could be something else more common but very dangerous to ignore such as Temporal Arteritis, somewhat more common for people with autoimmune disease. You want to see an Opthamologist as soon as possible and if your symptoms get worse or you can't see an Optho tomorrow or Friday you should go to the ER. How awful it would be to have Spondylosis and be blind.😬😞

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I was on Humira, which is adalimumab, but potential nerve damage is way down near the bottom of the list of possible side effects. I had a good five or six years before having these other symptoms…..