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How To Get Diagnosed

A MySpondylitisTeam Member asked a question 💭
Sarah Ann, WV
October 22
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A MySpondylitisTeam Member

The dr rolls dice and chooses something that sounds good. All based on whatever dr gave the term for it and their prior experience. A little consideration here, a little guesswork there. Afterall, have you ever looked up what "Ankylosing" means? Until its actually self fused it isnt actually ankylosing, it's "non-radiographic (aka nothing showing up on film). And when it's "sero-negative" it means there's nothing in the blood to prove it. So when i see "sero-negative non-radiographic" all i can think of is, why didn't the dr just say the patient is fine and needs to exercise more to strengthen their back? It's like they're putting the cart before the horse and the next thing you know the patient actually is sick because they reacted poorly to a non-diagnosis. Sorry, dont mind me, on a rant over yet another dr looking at me alarmed and suggesting i go immediately to get my face cut open to get to an artery today. I went to get a pedicure instead. I think most of us here would be better off without the drs most of the time. 😑

October 22
A MySpondylitisTeam Member

I have it. I just couldn't remember how my diagnosis came about so I put the question back out there. I was trying to tell a coworker about it and couldn't remember how I was diagnosed

October 22
A MySpondylitisTeam Member

Be careful what you ask for, you just might get it😒

October 22
A MySpondylitisTeam Member

To get diagnosed with spondylitis, here are some steps you can follow based on my knowledge base:

1. Prepare for Your Appointment
- Make a list of medical diagnoses, recent surgeries or procedures, medications, and treatments that have worked or failed.
- Know your family history, especially regarding inflammatory Show Full Answer

To get diagnosed with spondylitis, here are some steps you can follow based on my knowledge base:

1. Prepare for Your Appointment:
- Make a list of medical diagnoses, recent surgeries or procedures, medications, and treatments that have worked or failed.
- Know your family history, especially regarding inflammatory arthritis or inflammatory bowel disease.

2. Hone Your Symptom Descriptions:
- Be ready to answer questions about your pain:
- Where and when does it hurt?
- How long does the pain last?
- What makes it feel better or worse?
- What does the pain feel like?
- How does the pain affect your daily life and functioning?

3. Multiple Doctor Visits:
- Be prepared for several doctor visits as it often takes multiple consultations to get a correct spondylitis diagnosis.

4. Use Diagnostic Tools:
- Utilize tools from organizations like the Society to Improve Diagnosis in Medicine to get organized for your appointment.

These steps will help you and your doctor better understand your condition and work towards an accurate diagnosis.

October 22

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