Connect with others who understand.

Sign up Log in
Resources
About MySpondylitisTeam
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Cheryl, Upon Perusing You On The Horse, I Have A Question. The Horse Almost Looks Like It Is Not Real; Is It?

A MySpondylitisTeam Member asked a question 💭
Houston, TX

Have you tried physical therapy yet? Have you tried anything else such as a treatment or drugs? Nothing has seemed to help me; pain management treatments, drugs, infusions of biologics. I take infusions of Orencia 1x a month and an IVIG of gamma globulin 2x a month which takes 5 hours. It keeps me alive since I don't have an immune system. I'll have to take it the rest of my life. I think Orencia is not helping the ankylosing spondylitis and I'd like to change my rheumatologist. He seems… read more

September 8
•
View reactions
A MySpondylitisTeam Member

Hello Wendy8754, I feel about the same although I think I have advanced. My rheumatologist took me off of Orencia to see if I felt any difference. There is no difference yet; I haven't had Orencia for over a month. I am visiting the same rheumatologist. I haven't found one suitable yet. There seems to be a shortage of rheumatologists here in Houston. I canceled an appointment with a new rheumatologist because I can't get to the office let alone if I have to have an infusion because it's in a hospital and they discontinued the volunteers to wheel me to their office.
Wendy, how are you doing?

1 day ago
A MySpondylitisTeam Member

Hi well how do u feel ?

September 28

Related content

View All

Speech / Tongue Effected / Saliva

A MySpondylitisTeam Member asked a question 💭
London, AR

Does Anyone Get An Electric Shock Like Pain Under Their Foot?

A MySpondylitisTeam Member asked a question 💭
Stockport, UK

Hi! I’m Having Right Sided Achy Pain From Right Groin Along The Top Of My Flank/ Anyone Experienced This? Kidneys Ruled Out

A MySpondylitisTeam Member asked a question 💭
Germantown, MD
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in