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Thoracic Outlet Syndrome?

A MySpondylitisTeam Member asked a question 💭

Does anybody have Thoracic Outlet Syndrome? I have a scoliosis in that area and am wondering if the AS, on top of scoliosis, could contribute to it?

I have been in agony since Christmas. Pain meds, physical therapy, EMG and ESI.

Finally, saw the doctor, and am finally getting checked for TOS.
Anybidy else deal with this?

September 8
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A MySpondylitisTeam Member

Hi Mamee, I also have a scoliosis in the thoracic section.
I am having trouble getting the Small - (spinal Muscular Atrophy) diagnosed.
Many doctors have not heard of it and don t know how to test for it.
I have the "bear hug" and sometimes it is like there is a piece of metal across the thoracic section - pressing on my back.
Very bad pain.
I have not heard of TOS. I will research it.
In some MRIs of my back, stenosis is described, neck, also.
Will send what I find out. Hope you will send your results, also. (Email address can only be seen by the question and answer creators)

September 8
A MySpondylitisTeam Member

Well my doctor said nothing about that. She didn't think that was the problem with that I was happening . Sorry. If I hear anything else I will let you know

September 23
A MySpondylitisTeam Member

Hello I have look that up because my symptoms are getting worst and it came up . I'm not sure but I'm going to my rehumatologist tommorow and will let you know what she tells me.

September 9
A MySpondylitisTeam Member

Thank you Lynn. I have never heard of spinal muscular atrophy either. Thank you for your response.

September 8

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