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How Can A Doctor Say That You Are In Remission For AS And When You Still Have Pain?

A MySpondylitisTeam Member asked a question 💭
Ste Adèle

I have been diagnosed with AS 15 years ago. A doctor told me that I was in remission. That the pain I feel is fibromyalgia.
I still feel sacroiliac pain, I have inflammation ( tendinitis in both shoulder) and hips. I know that you can have fibromyalgia and AS at the same time . I also know I can have osteoarthritis. But how can the doctor can say that it is remission ?
As I feel pain and tiredness every day
Thanks

July 20
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A MySpondylitisTeam Member

AS can cause permanent damage.
Damage that can't heal.

You may have pulled the knife(remission) out, but you still have the wound and permanent damage.

August 31
A MySpondylitisTeam Member

You can have osteoarthritis pain and inflammation but the blood test markers for autoimmune disease may be negative, such as ANA or CRP, which your dr might be referring to.

July 29
A MySpondylitisTeam Member

It ebbs and flows, the provider might mean that you haven't had a flare. My most recent flare was another episode of Covid, I am having some Long Covid Sx.

July 21
COVID-19 and Spondylitis Essential Updates Read more >
A MySpondylitisTeam Member

Achieving remission in ankylosing spondylitis (AS) means that the disease activity is significantly reduced, but it doesn't necessarily mean that all symptoms, including pain, are completely gone. Here are some points to consider:

- Remission Definition: Remission often refers to the reduction or absence of disease Show Full Answer

Achieving remission in ankylosing spondylitis (AS) means that the disease activity is significantly reduced, but it doesn't necessarily mean that all symptoms, including pain, are completely gone. Here are some points to consider:

- Remission Definition: Remission often refers to the reduction or absence of disease activity, which can be measured through various scales and imaging tests.
- Scales and Imaging: Doctors use tools like X-rays, MRIs, and number-based scales (e.g., ASAS 20) to evaluate disease activity and treatment effectiveness.
- Symptom Persistence: Even in remission, some symptoms like pain may persist due to residual inflammation or damage already done to the joints and tissues.

If you still experience pain, it's important to discuss this with your rheumatologist to adjust your treatment plan accordingly.

July 20

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