Thank you for your info, not looking forward to this part of this disease! (Email address can only be seen by the question and answer creators)

I had jaw/TMJ/inner ear pain that progressed over a period of months to the point that it was quite painful to even speak. Forget eating anything, even soft. My dentist couldn't see a reason for it. I consulted 2 ENTs and got 2 completely different answers, neither of which made a bit of sense and their recommendations made even less sense.

Finally I saw a maxillofacial specialist who said it was muscle spasms and inflammation from those spasms, likely as an extension of something else going on. This was a few years prior to my Spondylitis diagnosis. He did a few botox injections sometimes helpful, sometimes not so much. He also referred me to a physical therapist.

I saw a Doctor of Physical Therapy who worked on releasing the knotted myofacia tissue in my jaw and neck, then gave me a bunch of physical therapy exercises to retrain the curvature and my resting posture. By the time my visits with him were complete, 3 or 4 months, the problem was resolved. That was about 5 or 6 years ago. I do those exercises at least 4 days a week, preferably 6, and it has not returned.

Turns out that I have multiple severe structural abnormalities in my neck that were causing the jaw to ear problems. If you have Spondylitis then that could be your source of pain too.