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My Neck Was My First Clue About AS.

A MySpondylitisTeam Member asked a question 💭
Jefferson City, MO

With Degenerative Disc Disease Stage 4 my neck/cervical was dismissed. The pain was excruciating at work, holding a position to look down, draw blood, even lean forward taking a BP. Until the CT they took, only when I had to lie down and put my head in a holder for the scan I began to shake in such pain my moans were beyond my control. So loud. Once back in the ER stable I had 4 doctors come and neurology. The only thing besides the diagnosis from CT is I asked, "Is there anything I'm not… read more

November 25, 2023
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Managing Ankylosing Spondylitis and Neck Pain Read Article...
A MySpondylitisTeam Member

Presently, I'm in the process of an appeal, (with my attorney) from the first denial. I was referred by my PCP to both Psychiatrist and Psychologist. I had so many appointments due to the physical issues and work I could not find time to cram anymore appointments. I asked her which one is more important to start with, she said, "both". So I did a number of weeks ago. I have both. 3 diagnosed independently. They diagnosed 3, the exact same and I'm getting help. I had so much Physical therapy that was twice a week. It was good to go but did not reduce my pain, especially in my neck. I did leave with some good takeaways.Thanks Pam for your kind reply and insight. We all just keep going forward with the help of our innerself and others.

November 26, 2023
A MySpondylitisTeam Member

@A MySpondylitisTeam Member, I agree, with DDD and several layers of arthritis in my neck, and my last MRI showed a cyst in my neck. Painful, I am sorry you have to work.
Oh, dear, shaking, moaning beyond control is allowed.
I had to see a physiologist before they granted me SSI. I really hope you can get on disability. I will be thinking of you. 🙏
It is very hard communicating with family and anyone; they can't see your pain. They would have to walk in their shoes to understand.
Wishing you all the best, Lola. 💗
God bless you, 🕊️
@A MySpondylitisTeam Member

November 26, 2023
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Use every resource available to you. You may have to ask questions & do some research but, there IS help out there. I wish you the best & God bless you. 🙏

November 25, 2023
A MySpondylitisTeam Member

Tell you family the way it is,some days are good others are rough hugs to you,bless your ❤️ heart!

December 9, 2023
A MySpondylitisTeam Member

You're the kindest sweetest....and thank you. I have a full week of appointments because my situation sank a little more. I'll update when I get the next clue. Meanwhile. how are you and I hope you feel my thanks for asking me today.

December 4, 2023

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