Connect with others who understand.

Sign up Log in
Resources
About MySpondylitisTeam
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Quit Biologicals Completely? And What Was Your Experience? Have You Stayed Off Biologicals?

A MySpondylitisTeam Member asked a question 💭
Grand Haven, MI
September 29, 2023
View reactions
A MySpondylitisTeam Member

I have not had this experience yet. I’m giving Enbrel 3 more months to work then 🤷🏼‍♀️

I have read that going off will send you into a bad flare up.

There are financial programs to assist with the high cost of these biologics. Just Google “name of drug + financial assistance”. My copay for Enbrel was $2200 a month and the financial aid program knocked it down to $0. Hope this helps. 🤗

September 29, 2023
A MySpondylitisTeam Member

Hi CWF,
I began in March. I've wondered the same thing as you. Since I've been on them I've had fewer flare-ups. However, I am aware of the risks or shall I say the cost of current relief but long-term illnesses due to them. Thank you for posting and I'll follow your thread.

October 2, 2023
A MySpondylitisTeam Member

Until a few months ago, I was on biologicals since 2007. For a variety of reasons including the risk factors and side effects, I am considering to just forget about biologicals altogether.

After being off almost 3 months I'm doing better than I thought I would be. Not near great, but mostly bearable, and no big flares yet.

I was curious if anyone has experienced quitting biologicals after being on them for years?

September 30, 2023
A MySpondylitisTeam Member

Thank you for asking this question. I also had been wondering about asking this question.

September 29, 2023
A MySpondylitisTeam Member

I was on Remicade for a long time, and due to switching jobs (Cobra) and insurance company going cheap they switched me to Inflectra. So I went without for like 2 to 3 months and it was an absolute hell for me since I desperately needed it for multiple chronic health conditions (Ulcerative Colitis with associative arthritis, AS, etc……) and the doctor’s office was slow and negligent about fixing things. I had to suffer greatly with no aid. When I got on to Inflectra things got better, but my body has been back and forth with the cheap a$$ biosimilar. This past one I had a backlash which lasted 3-4 days. If my body ends up rejecting it, then I have to get on the Humeira shot. All because of the damn insurance, and I get the insane costs. I always plan for and have to pay the max high deductible which is thousands, but when I hit my cap it gets better. Honestly, I would have given up on life if I had not received biologics. There are pill alternatives, but they are not as good.

September 29, 2023

Related content

View All

Looking For Opinions/information/experiences With Biologics, Especially Adalimumab. Thanks.

A MySpondylitisTeam Member asked a question 💭
Manitoba, Canada

Tentative About Starting Humira

A MySpondylitisTeam Member asked a question 💭
Mckinleyville, CA

Do Biologics And Methotrexate Make You Lose Your Hair?

A MySpondylitisTeam Member asked a question 💭
Northwest Georgia
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in