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Has Anyone Had Their Parents Tested For The HLA-B27 Gene After They Were Positive?
I’d like my parents to be tested for the gene. Both are good candidates 🥺. They won’t go to a Rheumatologist. So I’m wondering if a primary care doctor could test them for the gene.
Has anyone encouraged their parents to be tested ?
Answer Summary
Members discussed the question of whether to pursue HLA-B27 genetic testing for family members after receiving a positive result themselves,... Read more
@A MySpondylitisTeam Member - thank you for sharing this perspective 🤗. I needed to read this. I guess I’ve subconsciously held back on encouraging testing for all 3 of my adult children except for one. My 2nd born daughter has autoimmune symptoms - fatigue, previous problems with her back, gluten allergy, rosacea. Her Dad has Psoriatic Arthritis. Kind of wild that we both have that disease 🙃. She just finished her internship and currently looking for a job. Once she gets benefits, she’ll go to a Rheumatologist for testing. We’ve talked about it. She wants to get tested. So that’s our plan.
You’re right! It could create a sense of being doomed and that stress could actual bring on symptoms. I’m sure watching her Dad in pain is oh so hard enough. 😢. I think that’s why my Momma is hesitant and says “I don’t have it!” Although she has fused disc in her neck that cause pain & severe knee pain etc. She’s 82 yrs old so I get it. My Dad on the other hand is open to be being tested but won’t start with yet another doctor. 😭. So hoping his primary dr can order up the test for HLA-B27 - AS gene for those who are new 🤗 but not required to have AS 🤗
Good counsel. 🙏🏾Thank you Joshua 😃
There was no need in my case my mom and dad both already had it.
@A MySpondylitisTeam Member it would be nice to know where it came from even though it doesn't change anything. I get it.
@A MySpondylitisTeam Member - it probably doesn’t matter to my parents either. I just wanted to trace it back. Not to point fingers or anything negative like that. I’m just curious and I think my grandmother may have had it. She was in so much pain 😢
It's a test to see if you could possibly AS. Do u see a Rheumatologist?
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