Karen,

This tough medical journey can take awhile. It sounds much like many others here. Am I correct that your symptoms are more active on the Left side? Also, do you have neck stiffness and inflammation from the base of the skull to at least the middle of your neck?

If you use a phone or tablet, make sure your neck is aligned upright and not bent while using the handheld device. This well reduce headaches, neck pain, brain fog and eye pain. The torque on the neck can cause nerve impingement over time. It will certainly make symptoms worse for cervical AS.

Best wishes to you. I look forward to reading helpful medical care for you. This is hard. But, I'm so glad you found this website and the people to support you.

I also have dry mouth

Brian2 yes my left side is the one that constantly tingles.
Like I said I am making a list of symptoms to take to the Dr. Anyone else have tingling in the face? I also noticed a have a dry mouth. Anyone else?
Karen

Eileen, it hurts to read another person struggling to receive quality, good care. Your writing indicates the neurologist's MRI images of your spine indicated a need for PT treatment. I am not a physician, yet, my personal and professional journey in life has acquainted me with thousands of medically challenged persons among those not easily diagnosed. Your are profoundly hurting with disabling issues. I don't know any doctors in your area. However, ask family and friends if someone could help do a Google search.
• Search for a doctor specializing in managing effective treatment plans for Ankylosing Spondylitis and rare diseases.
• Please include your health insurance in another search. Also, call your health insurance and request assistance in finding a primary care physician who is very good at effectively managing treatment plans for rare diseases. They will be biased toward physicians who help their profits. The health insurance staff do find it rewarding to help someone receive better medical care.
Please add this to your tool box of "finding helpful doctors."
During this long journey, please consult with a nutritionit in your area. They can help reduce some pain through food, homeopathic medicines, and over-the-counter medicines.
The following are things that I remind myself to do.
• Be patient and focus on what small steps result in positive changes.
• Find a hobby that you can do most days that is meaningful to you.
• Eat the portions of nutritional food that make you feel better.
• Spend some time with others who share in your interests.
• Likewise, spend time with family and neighbors who love you.
Reward yourself with these.
My days of brain fog and fatigue are partly caused by Rx interactions in addition to many progressing severe Ankylosing Spondylitis issues. These have resulted in weeks and months at a time of not being able to respond here. Please keep writing your questions and sharing your personal journey you are worth good health care. Others will also share their insight and support you.

My physical therapist used to come to the house he said he's not going to hurt me anymore every time I would try so hard to do stuff I'd break out into a total rash and swelling would get worse I think I want to drive again I want to do this again I want to do that again and I just give up now after adult services came to the house because of the care I'm not getting they could not believe the condition I wasn't but this is a person that used to be so healthy from the thoracic surgery to the comas and everywhere in between from your neck you should not be having such problems with your hips and legs and it goes way down my feet it's so horrible I can't walk anymore I would do anything to be able to be a human being again that's why my daughter lives in Delaware I live in Pennsylvania and a small town I just feel like I get no answers here my daughter said she would help me get to a place where I can get some answers where is this place at I will go there what insurance is do they take request of Blue shield cuz I'm switching my insurance company to that I have gone through a house five horses my service dog a car a Harley now I'm alone my grandchildren came to get their checks I don't want to complain all the time and all you have to do is talk about your health because that's all you have anymore and I'm tired of talking about how bad I feel I want to talk about how good I feel I don't think I even remember having a sickness I was in the hospital for 5 hours with I'm broken hand and after I felt choking I could see for a week and then the next week I couldn't see and now I'm seeing again so that's why I'm writing you guys please send me somewhere I can get some of my answers I'm in Warren Pennsylvania that's northeast Pennsylvania in a small town if you know of any good doctors send me to them I'll go