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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Recieved Infusions For Thier Ankylosing Spondilitis

A MySpondylitisTeam Member asked a question 💭
Santa Fe, NM

My Rheumatoligist has suggested that get in infusionssf Siponi Aria? I am going to get my booster next week then I have to wait 2 weeks before I start the infusions

November 25, 2021
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A MySpondylitisTeam Member

I have been on Simponi infusions every 8 weeks for 2 years.

August 29, 2023
A MySpondylitisTeam Member

I have been on simponi aria probably 3 years. Before that I was taking ibuprofen 800 twice a day. Had me in kidney failure stage 3. Stopped that and started taking Tylenol arthritis strength and now with the infusion I rarely take it unless I am really hurting. I also use frankincense salve for my achy neck hood lower back knees feet really sll over. Really helps. I am blessed. My kidneys creatine is normal.

August 8, 2023
A MySpondylitisTeam Member

Simponi Aria didn't work well for me
Switched to Remicade infusion 4 vials.
Doctor just upped dose to 6 vials. I have 3 kinds of arthritis, osteoarthritis, rheumatoid and ankylosing spondylitis. Makes it difficult to treat all 3 with 1 infusion. Also take methotrexate 8 tablets once a week, and sulfasalazine for inflammation. They all help somewhat but not enough to sleep through the night. I'm up every 2 hours from pain. Stay indoors as much as possible.

July 23, 2023
A MySpondylitisTeam Member

I’ve been on a ton of biologics. Humira, couldn’t handle the pain, then Remicade every 4 weeks initially, then it stopped working…I went on to a shot I gave myself once a month that caused very bad bruising so stopped it. On to cosentex, pharmacy wouldn’t pay for it so I had to get on Taltz. Now I’m strictly on Medicare and once again they have changed my biologic to Rinvoq, a pill you take once a day. It seems to be working as my hips and sciatica have not hurt as bad. Good luck to all of my fellow Spoonies, I hope you find your pot of gold and find some relief.

June 11, 2023
A MySpondylitisTeam Member

Yes for simponi. I took it for 6 months till my husband was laid off. I'm 64 and no one will sell me insurance under $1000 a month. I cannot afford that. I have 6 months till I can resume my infusions. Those infusions made a night and day difference in my life! Thank GOD for these drugs!

June 4, 2023

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