COVID-19 and Spondylitis Essential Updates
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The Pain Becomes Unmanageable And Only The Highest Dose Of Prednidone Takes The Pain Level Down. How Do You Survive This?
Managing severe pain from spondylitis can be incredibly challenging. Here are some tips based on the knowledge base:
- Open Communication: It's crucial to have open and honest communication with your… read more
How Can U Go About Getting A Good Diagnosis Of This When You're Adopted
Getting a good diagnosis of spondylitis when you're adopted can be challenging due to the lack of family medical history. Here are some steps you can take:
1. Prepare Thoroughly: Make a list of your… read more
Does Anybody Else Suffer From Chronic Dizziness And Headaches?
He's wrong about your dizziness being from COPD
Torn Hip Labrums - Who Has This, Describe How It Feels, What Are You Doing For It?
I have a one quadrant tear on the left, two quadrant tear on the right. The rest of the hip joint is good on both sides, occasional bursitis flare, lesion in the marrow of one femur trochanter, but no need for full replacement yet so I'm not keen on arthritis scope surgery to repair the labrums because I figure I'll eventually need full replacement of the joint anyway. I'll wait for that to fix it all at once. Minimize number of times under general anesthesia. 😏
I'm wondering if anyone has… read more
Thanks Brian! I'm working hard at it as you know, practicing what I preach as much as possible. I need to be able to back up what I suggest right?! No hypocrisy in this basement, not even in the… read more
Rebuilding Life With A/S
Greetings my friends; I've been silent due to Helene and Milton hurricanes. This is a brief update about it's impact on my home, car, and health, but also about how I have proceeded since the waters have begun to recede, water is boilable, and the power has now been restored. My home was flooded, twice. As many who were hit in a two week period, clean up had just begun when Milton came. Even shelters flooded or as you know the Tropicana Dome Stadium that held 10,000 cots for a shelter had it's… read more
Thank you for your kind message and this lovely quote. Yes, together we are stronger...
What Is A Flare Up And The Symptoms That Go Along With It?
@A MySpondylitisTeam Member, you are much welcome. I am glad to hear you are feeling much better since the swelling in your toes is almost gone, good news! Darn, sometimes those coughs, just ang… read more
I Cannot Stand On My Feet. How Many Feel So Alone?
I cannot stand on my feet an longer than 15-20 minutes before they are absolutely killing me. My diagnosis are AS, Fibromyalgia, sjogrens, Raynauds, and neuropathy. I hear how people describe neuropathy as pins and needles but I don’t have that. I never know how to explain it but my feet just hurt and the longer I’m on them the more swollen and red and hot they become. I have to literally plan each day around my feet, meaning I have to decide what hideous shoes to wear for the day, to making… read more
Many people with spondylitis experience feelings of isolation and loneliness due to the invisible nature of their pain. According to the knowledge base, lack of validation and understanding from… read more
Why Am I Finding This So Hard.
I feel that my head is going to explode, I can’t seem to get myself motivated and feel that everything is taking over me. Am very low & grieving badly for my dad. I have a great family but feel so alone.
Isn't cheese before bed supposed to give you nightmares?
How Do YOU Cope?
I am curious how everyone finds ways on a daily basis to cope with their challenges. Everyone has unique circumstances and experience this condition in unique ways. I am interested in learning the unique ways everyone has for coping. My biggest change for how I cope is a gratitude practice and part of that is connecting on this platform with others who can relate. I know how bad this disease can get and I am grateful everyday that I am nowhere near experiencing the worst of it. I accept where I… read more
Thank you for the hug. A big one back to you. How have you been doing?? Still staying busy, I hope. I had a bone scan today. Doc wants to take some things off of the table. CT scan tomorrow. What a… read more
Does Anyone Have So Much Fatigue And Brain Fog That They Feel Drunk And Mix Up The Vocabulary? Is This An AS Thi G?
KAB what treatment and procedures are you receiving from your Pain 👨 doctor?
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