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Has Anyone Taken Leflunomide? What Were Your Experiences With It? I Am Going To Be Adding It To My Pile LOL

A MySpondylitisTeam Member asked a question 💭
Billings, MT
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A MySpondylitisTeam Member

Leflunomide, also known by its brand name Arava, is sometimes prescribed off-label to treat spondylitis. According to the knowledge base, 121 people have indicated they have taken Arava. Common side… read more

What’s The Best Meds For. Ankylosing Spondylitis

A MySpondylitisTeam Member asked a question 💭
Foothill Ranch, CA
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A MySpondylitisTeam Member

Yes it helps but I still need Vicodin

Has Anyone Ever Had A Reaction To Sunlight?

A MySpondylitisTeam Member asked a question 💭
Clovis, CA

I was going to the gym and I went into a tanning bed for 3 minutes for the first time and I had to go to emergency room because I had a flare and my organs swelled so much I had a catheter put for a week!

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A MySpondylitisTeam Member

I get a rash if I am in the sun more than about 20 minutes. Have been too scared to get into a tanning bed since diagnosis. I take Arava, Sulfasalizine, & Enbrel.

Side Affects Of Leflunomide

A MySpondylitisTeam Member asked a question 💭
Australia

I e been on this new drug called Leflunomide for 4 weeks and it’s making my hair fall out rapidly. Has anyone had the same issue? And any great advice on supplements I can take to stop it continuing 🙏

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A MySpondylitisTeam Member

I have had no side effects from Methotrexate but haven't had much relief either

Cymbalta

A MySpondylitisTeam Member asked a question 💭
Asheville, NC

Hi everyone, I am a recently diagnosed 51-year-old woman and I’m struggling with days of intense depression. My primary care doctor has mentioned that Cymbalta can help alleviate the depression especially in chronic pain disease patients. Does anyone out there have any experience with Cymbalta?

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A MySpondylitisTeam Member

This is very helpful. I haven't been functioning on a normal level for the past year. I am so discouraged. This might help while I wait for Blue Cross to decide if they will cover the drug Sublocade… read more

Arava

A MySpondylitisTeam Member asked a question 💭
Sunderland, UK

Is this safe to take with Thyroxine & Candisatin.

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A MySpondylitisTeam Member

I was on this for a couple of years for my RA. I now have peripheral neuropathy & nerve damage in my feet which they think is due to arava side effects. Not nice, so would avoid this med especially if… read more

Is Someone Taking A Biologic+methotrexate+ Sulfasalazine All 3 At Once & How Did Your Body Handled It.

A MySpondylitisTeam Member asked a question 💭
Calgary, AB
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A MySpondylitisTeam Member

I take Arava, Sulfasalizine, & Enbrel all together and have had good results.

HLA B-27 Negative

A MySpondylitisTeam Member asked a question 💭
Green Bay, WI

I'd love to meet others who have AS without B27. My father and I both have the joint damage and were diagnosed about two years ago.

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A MySpondylitisTeam Member

I've been on remicade the longest, that dose was increased from 500 to 600 mg/ 6 weeks, methotrexate keeps getting higher -- started at 10 mg/wk now up to 20 mg/wk, and celecoxib twice per day. I'd… read more

How Has Humira Helped (or Not) With Your AS?

A MySpondylitisTeam Member asked a question 💭
Harrisburg, PA

I am supposed to start Humira at the end of the month and would love to hear feedback on your experience with the medication.

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A MySpondylitisTeam Member

I like Humans 😀

Tailbone Pain And AS

A MySpondylitisTeam Member asked a question 💭
Nashville, TN

Hi there,

Recently diagnosed with AS after 15 years of chronic back pain including tailbone pain. I wondered if anyone with AS has experienced chronic tailbone pain? Did your treatment alleviate your pain or help with mobility? Thanks!A

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A MySpondylitisTeam Member

Yes I do but I had fallen and broke my tailbone 3 yrs ago and that’s what started this terrible never ending pain. The tailbone always hurts. I’ve tried every injection you can think of and nerve… read more