COVID-19 and Spondylitis Essential Updates
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I'm In Phoenix And Looking For A Support Group. Any Ideas?
Welcome to the team! This is the most informative site I've found on Spondylitis
Sudden Hearing Loss And Tinnitus Related To AxialSpA
I asked a question a few days ago and realised I only put half the question. Anyway. I had sudden hearing loss in my left ear 18months ago and tinnitus and wondered if anyone else here has experienced the same with spondylitis......
I have to turn up the volume on my TV too. I also have Tinnitus, I read somewhere that it's not that we don't hear, it's that our brains mess up and don't comprehend the words, and "yes it sucks", I… read more
Memory Loss
Has anyone else experienced memory loss ? I used to be a computer programmer, now I can barely remember how to use excel. Does your family get mad because you forget?
Yes, I have bad memory loss, it comes and goes as it likes, I can forget what I'm talking about mid sentence....
Dactylitis, Anyone With This Condition, Does It Ever Resolve On Its Own?
This is a Psoriatic arthritis symptom. I have Psoriatic Spondylitis, a less common form of Psoriatic arthritis. I'm just this past week having my first experience with dactylitis in my primary thumb, feels like it has been smashed with a hammer and is twice the size it normally is. Topical voltaren gel and copper fit glove has helped some, but wondering if it ever goes away.
I understand Susan. Indeed, sometimes we must cave to the knife, no getting around it. Im glad it worked for you and all is well now. Yeah, that was a sharp attention getting relentless pain for a… read more
Does Anyone Else Have Spinal Stenosis And Resulting Leg Numbness/pain/weakness When Walking?
Does anyone else have spinal stenosis and resulting leg numbness/pain/weakness when walking? I’ve had stenosis affecting my walking to some degree since I was 26. I keep hearing I’m “too young,” so I’m just curious if others on here experience it as well.
@A MySpondylitisTeam Member. Yes. I learned special PT exercises in 2012 for lumbar, and SI, then in 2017or18 for cervical spine to upper thoracic. I do all of them at least 4 times a week and those… read more
Off Of Humira And Wondering What's Next?
Due to my recent move to a new state my medical professionals are unable to continue to assist me out of state. Therefore, my Humira has run out without a pre-authorization from my PCP. I read If you stop using your Humira, your condition may worsen. Humira is not a cure. Withdrawal side effects are not likely to occur with Humira, but your signs or symptoms based on your condition, like joint pain and inflammation, stomach symptoms, or structural bone damage may worsen or return.Aug 29, 2024"… read more
@A MySpondylitisTeam Member. That's fantastic to hear DC! I hope you dont mind me using an abbreviation for your name☺️. I am so happy for you that things are improving. I'm not sure if i mentioned it… read more
I'm Trying To Decide About Biologics. I'm Prone To Sinus Infections. How In The World You Make Your Final Decisions.
I have a Rheumatologist I trust 100%. She has given me an extra 10 years at work, helped me to engage my hobbies with ease and watch my grandkids growing up. When she said at one appointment I had to… read more
COVID Affects While On Two AS Medications.
Yesterday I worked a 12-hour shift at the hospital. My day was spent with extensive hours in one patient's room. She was there for other conditions. Due to a procedure scheduled, she was given a COVID test. It resulted in a positive. When I let her know, she cried, "What else can go wrong"? I just gave her time, knowing, this news was compounded by her other issues. I said a prayer for her, my coworkers, and myself silently. Today I called each appointment I have scheduled for this week. Each… read more
Thank You for your understanding
Holistic Doctor
Has anyone ever tried a holistic doctor? I'd like to come off humira but wanted to see if others had success or not.
I also want to try a holistic doctor. I'm trying to do research now. I will relay what I find. Unless someone has information on it
Anyone Negative For HLA B 27 Here?
I'm currently in my work up for AS. Dr. Dx it as AS. I believe it's
AS but my HLA B 27 just came back negative. Anyone else negative?
I've already done so. I've never heard that I will eventually have a positive result regarding the HlA B27. No one has told me that. I am already bad. I'm on a biologic. My c spine is fusing and… read more
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