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Memory Loss
Has anyone else experienced memory loss ? I used to be a computer programmer, now I can barely remember how to use excel. Does your family get mad because you forget?
Yes, I have bad memory loss, it comes and goes as it likes, I can forget what I'm talking about mid sentence....
Has Anyone Had To Deal With Family Members Or Friends Who Make It Clear They Do Not Believe That You Are Dealing With A Serious Illness?
Thank you for your lovely reply.
Take care of yourself !!
I Cannot Stand On My Feet. How Many Feel So Alone?
I cannot stand on my feet an longer than 15-20 minutes before they are absolutely killing me. My diagnosis are AS, Fibromyalgia, sjogrens, Raynauds, and neuropathy. I hear how people describe neuropathy as pins and needles but I don’t have that. I never know how to explain it but my feet just hurt and the longer I’m on them the more swollen and red and hot they become. I have to literally plan each day around my feet, meaning I have to decide what hideous shoes to wear for the day, to making… read more
Many people with spondylitis experience feelings of isolation and loneliness due to the invisible nature of their pain. According to the knowledge base, lack of validation and understanding from… read more
Has Anyone Else Had Memory Recall Problems? Mine Has Gotten So Very Bad
Yes, many people with spondylitis have reported experiencing memory recall problems. Here are some shared experiences:
- One member described their memory loss and brain fog as affecting mostly their… read more
How Do You Answer A Question To Another, Friend, Spouse, Reletive, Etc.? About AS
I don't know what to say to them with out getting into a fight about it. My family always starts up an argument about what I try to say. Then I end up running to my room crying.
When answering a question about ankylosing spondylitis (AS) to a friend, spouse, or relative, it's important to communicate directly and honestly about your needs and feelings. Here are some tips… read more
Asking A Person Who Has Memory Problems To Remember A PASSWORD Every Day, Is The Straw That Broke The Camel's Back.
I'm too tired to deal with it. This site sends me the info, personal stories, and questions from members, anyway if they send it to my email address then they already know I'm a member so why are they asking me this horse shit
every day? Good-by. OH, BY THE WAY, HOW WAS YOUR DAY?
@A MySpondylitisTeam Member. Sure does!
Who Has Temporal Arteritis Along With Spondylitis?
As if Spondylitis isnt frustrating or painful enough. 😑 I went to my Opthalmologist today for eye pain that causes piercing headache with shooting nerve like sensation thinking it's just a bad uveitis flare from my recent trip and quitting all anti inflammatory meds in preparation for this week's stem cell transplant. He thinks i have temporal arteritis and wants me tested tomorrow by temporal vein biopsy. Im thinking I'll wait til next week sometime after my Monday Nephrology follow-up from… read more
@pitacThanks for the hug my dear friend❤️
Did Ankylosing Spondylitis Change You Other Than Physically?
Does anyone else feel like their personality and outlook on life has changed?
I put a smile on my face but inside I just feel so sad. Like I’m just a shell of who I used to be. Like the old me is gone. Most days I am okay but some days it is such a struggle to do anything like chores or things I use to enjoy. I don’t know maybe I’m just having a rough day. I know talking to my fellow Spondylitis sufferers understand. 😔😟
Yes, my life has been changed in every way. I struggle with depression and anxiety.
I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?
Also maybe finding it harder to come across words?
yes getting worse for me, memory and words.
I Am So Itchy Lately, I Don’t Have A Rash Anywhere But I Feel Itchy Everywhere. & When I Itch It Won’t Even Be 5 Minutes Later I Get Bruises
I have axial spondylitis with sacroiliitis
@A MySpondylitisTeam Member. If your liver or anything else comes up outside the green zone check how that parameter has moved over time if you have a historical record of it. Some people on some… read more
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